Families with children that are dealing with medically complex conditions are on Capitol Hill this week to push for better health care access and coordination for children.
Jamie Schanbaum is now a student at the University of Texas and is one of those taking part.
Nearly five years ago, she contracted a deadly form of meningococcal septicemia. Her fingers and both her legs had to be amputated to save her life. She now works to educate others about the disease and make sure that others have the healthcare assistance they need.
Schanbaum says lawmakers are very understanding when she talks to them about healthcare needs.
"When you get a story to you, and you hear personal narriation about what they went through, it puts a different perspective. It's like, 'Wow, I'm doing this for the right reason.'"
According to the children's hospital assoication, nationally, nearly six percent of the roughly 30 million children on Medicaid have complex medical conditions.